Tuesday, July 24, 2012

Thank you to everyone for your thoughts and prayers as we try to get through this difficult time. As you know we were able to go to the funeral home yesterday to make the arrangements and Liz and I went to the church today to set everything for the funeral mass up. I want to especially thank the people who have stopped by my moms house. Jeff and I have been staying here with Gracie, as well as Liz and Phil. My Dad has been over often as well. It is a lot easier being around people, and is nice to be able to look through pictures and share funny stories about Andrew. I cant begin to express how much we all miss him already. Andrew had a heart of gold, he never complained about anything, even while dealing with all his medical issues. Andrew touched so many lives in his short 19 years, more than most do in a lifetime.Andrew will be missed by so many. The neighbors, the Romanczyk's, Donahue's, Allens, all stopped by yesterday as well as Jessica and Terry, Uncle Matt and Aunt Markie, Jessica stopped by again today, along with a visit from Jenn and Annie (Old St. Raphael's Friends). One of my best friends Tonia stopped by today also to drop off a huge bin of scrapbooking supplies to be able to get the poster boards done for the funeral. Words cant express how greatful we are for all of you.

Andrew with his Dad at Houghton Lake.
Andrew holding his trophy fish.
Andrew holding his only niece Gracie for the first time.
Andrew fishing off the dock at Houghton Lake.
Andrews thinking "The trophies mine!"
Andrew as a baby, with our neighbor Chelsea.
Even though at this point Andrew had lost control of his left arm and leg he still was able to go tubing, without any complaints of how hard it was.





The link below is the funeral arrangement for Andrew.



http://www.neely-turowski.com/fh/obituaries/obituary.cfm?o_id=1541139&fh_id=10676

Monday, July 23, 2012

Unfortunately i have some devastating news to share with you all. On Friday at the family meeting, there were many doctors, the head of neurology, the x-ray techs, the ICU doctors and all of the doctors who have been treating Andrew since the beginning of his hospital stay. They covered all of the MRI scans with us and basically said they cant stop the seizing. Every time they try to lower the dose of medication (Coma meds) he starts seizing again right away. On top of that, all the damage the stroke did, and the 19 hours of seizing when he had his Grand Mal seizure and the seizures he had on top of that, that if he made it through this crisis his quality of life would be very very poor. The brain was damaged in all parts except a small portion in the frontal lope. The part of the brain that controls speech, swallow, sight, hearing, cognitivity, ect.. all of this was gone. At this point we were terrified for Andrew, we couldn't imagine him having to wake up like this, on life support, on all these machines and IV's not being able to communicate with anyone, not being able to see anyone, hear anyone. The doctors wanted to prepare us that at any moment Andrew could pass away.

Unfortunately last night after one  hell of a fight Andrew passed away at 9:36pm. All of Andrews close family and friends were with him. He passed very peacefully. There is no doubt in my mind that Andrew is in Heaven right now with his Grandpa Don playing Yahtzee and teaching him how to play Domino's. Andrew is the strongest person I have ever known, and I can not describe how hard this is going to be for our family and his many many friends to get through. Thank you all for caring so much for my brother. Andrew touched so many lives in his 19 years, and was loved by so many people. My sister will be posting the funeral arrangements.

Friday, July 20, 2012

Just wanted to post a small update, Andrew is stable right now, no changes, its the weekend, so nothing gets done at the hospital over the weekend which we have all learned. I will keep everyone posted. Please continue to pray for Andrew.

Thursday, July 19, 2012

I thought i would just share that Andrews fever seems to be under control and they have given him antibiotics for the infections. Nothing else has changed. There is supposed to be a family meeting tomorrow between my family and all his doctors to discuss where we go from here basically..

Wednesday, July 18, 2012

Small Update for now..

Its Wednesday afternoon, i did not go to the hospital last night but as far as i know, Andrew was given some Propofol for twitching and i think he was given Pentobarb, Versed and Depakote boosters not hooked to IV. And that has seemed to help. Andrew does have a high fever and there is infection somewhere, as far as i know nothing has changed with the fever or infection, im not sure if they know where its coming from or not. I was unable to go last night or tonight because my baby has a fever so i had to skip part of work today, hopefully everything will be good and i will be able to go to the hospital tomorrow night.
Anyways, some GOOD NEWS!!! Andrew's muscle biopsy came back he tested negative for MELAS!! Now his neurologist thinks he has Wilson's disease possibly.. who knows. It sounds like the doctors are all guessing and putting him through the ringer until he tests positive for something. Wilson's disease sounds nothing like what is going on with Andrew if you ask me, but who knows, im not a doctor! I will post some info on the blog about Wilson's Disease when i get a chance. It sounds like if it is caught early enough before organ damage is done this disease is treatable. Who knows how long he has had this, if it is this and who knows how bad it is. Im not sure what the doctors next step is, i am going to try to talk to my parents tonight and gets some updates and see how things went today and if the doctors have said what the plan is...
For right now, Andrew is still in Coma (the doctors said they would be worried if Andrew had not woken up by today but i think that has changed since they have given him more of the coma meds, not sure yet though). He is still on feeding tube and ventilator..

Continue to keep praying, Andrew is strong, he will get through this.

Tuesday, July 17, 2012

Pray, Pray and Pray some more!

As many of you have read on the facebook page, Andrew started seizing again yesterday afternoon. They gave him a couple shots of Versed, which did not stop the siezing. They ended up giving him his Depakote through IV instead of feeding tube (since his stomach wasnt absorbing the feeding tube, which they knew) and it seemed to stop the seizing. While my mom and Rose were there last night it started again and he was given a couple shots of Pentobarb and Versed and it stopped. He is going backwards, we want him off these meds and to wake up, these meds are putting him to sleep. I havent got any updates yet today, i will make sure to update when i hear.