Still No Visitors Please.

It’s Tuesday. Not much has changed since my last post. Right now everyone thinks its better to let the nurses and doctors be with Andrew, every time he sees one of us he gets agitated and needs to be sedated. They have been sedating him every 3-4 hours with Adivan. The nurses keep him calm somehow, whenever he sees anyone he’s related to he tries to get up and leave. I think all of us under estimated how strong Andrew is, he is physically strong as an ox! It took 8 people to keep him in his bed, two of which were huge men.

They were supposed to do Andrews spinal tap, ophthalmology examination and biopsy yesterday all while he was put under. They ended up just doing the spinal and ophthalmology exam, they are going to do the biopsy today now.

 It seems like everyone is on the same page with trying to get all his procedures done as quick as possible, get some results as quick as possible, confirm his diagnosis so we can move to the next step. A psychologist is supposed to visit Andrew this morning to do an evaluation and to see if there is some kind of medication that will help him cooperate with us. Speech pathology can’t even go in there and talk to him or do an evaluation because he has his mind set on escaping from the hospital whenever he is not sedated.

 We are worried about what is going to happen with Andrew once he is released from the hospital. Who knows how long he will be in the hospital, if it’s at the rate they do their tests and get their results were probably looking at a really long haul. Hopefully some kind of medication will help Andrew focus and work on being able to communicate with us so he can come home with us. In the condition he is in now, there is no way either of my parents would be able to take care of him at home.  It’s hard to tell if he knows what he’s doing and he just wants to leave or if he has no clue of what’s going on and is losing his mind.  It’s like he’s trapped in his own body and thinks he’s ok, but he’s not. We don’t even know if he knows he had a stroke. Liz and I were talking last night about IF it is MELAS Syndrome, life expectancy is 5 years from when your “Stroke like symptoms” start. And now the doctors are saying he had one in 2007 that no one knew about, it showed on his MRI in 2007 and no one brought it to anyone’s attention. They were looking for other things in the MRI in 2007, we don’t know if the doctors missed it or what happened, but none of us knew he had a stroke in 2007 until his doctor he has now reviewed past MRI pictures. How does something like this get over looked?? So, if he does have MELAS Syndrome, does his life expectancy start from 2007 or 2012? I know I am jumping the gun, but these are our thoughts and something I think we need to prepare ourselves for. We are praying that there is a light at the end of the tunnel, this is just so unfair. Andrew is so young, he has not experienced so many things in life.

 Please keep praying for him, we are hoping to get some results back soon so we can move forward, even if they could absolutely say that what he has is not MELAS, I would be good with that.

More Later...